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Rare diseases are more common than you think. Collectively, they affect over 30 million people in Europe1 and around 350 million people across the globe.2 A disease is defined as rare when it affects less than 1 in 2,000 people. 
Although there are over 7,000 different rare diseases, most share similar characteristics: they are often chronic, lifelong genetic conditions (72%) with childhood-onset (70%).1 Most rare diseases have no cure and are associated with reduced life expectancy and decreased quality of life.1,4


For people living with a rare disease, the lack of awareness and treatment options can make the entire experience extremely challenging and uncertain. Though each rare disease is complex and challenging to diagnose and manage, they do share many commonalities. 

At Novo Nordisk, we are driving innovation to discover new medicines and technologies to transform how we diagnose, treat, and care for people with rare diseases. We believe everyone has the right to therapies and care tailored to their needs, no matter how unique. 
Rare diseases need more than rare solutions. That’s why we’re driving change to create a better future where people living with a rare disease are less limited by their diagnosis and can live their life as they wish.

people live with a rare disease2

different rare diseases are known2

of all rare diseases are genetic1 and 70% have childhood onset1

of rare disease have no treatment options3

With Changing Haemophilia® we address the unmet needs in haemophilia and other rare blood disorders. Togehter with you and our community partners we are striving for better access to care, diagnosis and multidisciplinary care.

Information, tools and resources for parents to help them better understand their child's growth and development, which are important indicators of their overall health and wellbeing.

Resources for treaters of rare bleeding disorders. Here you can find information and resources around haemophilia and rare blood disorders.

1.

Eurordis Rare Diseases Europe. What is a rare disease? Available at: https://www.eurordis.org/content/what-rare-disease. [Accessed December 2021]

2.

Findacure. Rare diseases. Available at: https:// www.findacure.org.uk/rare-diseases/. [Accessed December 2021]

3.

Editorial. Spotlight on rare diseases. The Lancet Diabetes & Endocrinology. 2019; 7(2)75. Available at: https://doi.org/10.1016/S2213- 8587(19)30006-3 [Accessed December 2021]

4.

Bogart KR and Irvin VL. Health-related quality of life among adults with diverse rare disorders. Orphanet Journal of Rare Diseases. 2017; 12:177. Available at: https://doi.org/10.1186/s13023-017- 0730-1 [Accessed December 2021]